My first experience with Taylor was overwhelming.him to Boston to receive hemp oil in a trial medical treatment. There have been side effects that were not expected but they believe it is the combination with milk and the hemp oil. He experienced several weeks of diarrhea following his treatment. His mom kept him home during that time. There is often communication via text messages with the teachers, nurse aid, and parents. His care is a team effort. Lunch time is much smoother when we go in this day. Taylor is a totally different child than the one I witnessed my first time in the classroom. He still takes a while to eat, much longer than the other children. She later transitions him to the mat. He wants nothing to do with napping. She literally has to hold him and protect herself from him. He is fighting to rest.
The nurse aid and teacher work together to clean him up and contact mom. He is picked up early from school.
My third experience with Taylor was today. Today he did not have his regular nurse aid but a different one that has been with him regularly on Thursdays. He is not as happy with her but listens and does well. During nap time another woman comes in to work with him on sign language. Taylor is lucky because his parents have the financial resources to provide extras most children would not be able to get.
This makes me think of the privilege money affords disabled children. There are children who are not afforded the resources Taylor receives. When I first met him I thought why is so defiant. But then I realized that he was not getting what he needed nor what he was used to. I think we are all that way, it is just that he can’t express it in words. He can’t say where is my regular nurse aid? Why is this lady here today? He grunts and throws himself on the floor. It reminds me we have to look at the whole student not just the pieces.
I am so thankful for my abilities. I am also thankful my eyes have been opened and my heart for knowing Taylor for this brief time.